The North East Essex Clinical Commissioning Group was statutorily abolished on the 1 July 2022 and replaced by NHS Suffolk and North East Essex Integrated Care Board (ICB).
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The Early Intervention and Family Offer provides services to children, young people and families to support the management of neurodevelopmental conditions in young people aged 0-25.
This includes help to navigate both the clinical aspect of their care and non-clinical services such as general or individual advice about their condition and educational, social and financial support.
Clinical assessment, diagnosis and support is provided by by East Suffolk and North Essex NHS Foundation Trust (ESNEFT).
Support services for families are jointly provided by Virgin Care, Autism Anglia, Families in Focus and The Maze Group.
ESNEFT are the trust that manage Colchester and Ipswich hospitals. They provide clinical assessment and diagnoses for children and young people with suspected neurodevelopmental disorders (NDD). The ESNEFT NDD team can also liaise with fellow health and care professionals, such as physiotherapists or health visitors, if the child or young person presents with additional medical needs.
A diagnosis can help children, their families, teachers, and friends understand why they may be experiencing certain difficulties and what can be done to support them.
If you feel your child would benefit from having a (NDD) assessment, please speak to your child’s GP, therapist, school or health visitor. Assessments are available for children and young people aged 0 – 19.
Coordinators provide early and individualised support at any time in a family's journey, whether they are already being supported by some services or are just beginning to explore the help on offer. Coordinators act as a single point of access, and work to ensure families receive consistent support and access to all available information on relevant services. Coordinators work with families until the point that all of their needs have been fully met.
You can self-refer yourself to this service by contacting the Essex Child and Family Wellbeing Service directly.
Dial freephone 0300 247 0015 and ask for the Neurodevelopment Pathway Coordinators team. Alternatively, you can email the team at firstname.lastname@example.org.
Autism Anglia provide an advocacy service. They can help advocate on issues such as:
Any individual, parent or professional from North East Essex are able to refer a child or young person into the advocacy service. This includes care co-ordinators, social workers, schools and health professionals. To refer yourself or a family you're supporting, contact Autism Anglia direct.
Families InFocus offer one-to-one support, advice and guidance to families. Examples of support they offer include:
They also provide activity clubs, workshops, peer-to-peer coffee mornings.
You can self-refer yourself to this service by contacting Families InFocus directly.
The MAZE Group run free monthly drop-in sessions, a specialist weekly programme and additional workshops to guide, advise and support families of children with additional needs. The Maze Group run special educational needs and disability (SEND) parenting groups with regular coffee mornings in Colchester and Tendring.
You can self-refer yourself to this service by contacting The Maze Group directly.
Health and care professionals can contact the Neurodevelopment Pathway Coordinators team via SystmOne, by sending a referral task directly to the neurodevelopmental coordinators via the Essex Child and Family Wellbeing Service.
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